The mere thought of end of life planning can trigger apprehension in many individuals. However, it’s essential to recognise that discussing this topic doesn’t bring us any closer to the inevitable end. In reality, addressing end of life matters head-on can help us become more at ease with the idea that death is an intrinsic part of life.

End of life planning serves a crucial purpose. It not only ensures that your personal preferences are acknowledged and upheld but also provides you with the peace of mind that everything will be arranged as the end of life draws near. This assurance allows you to focus on living your life to the fullest, unburdened by the uncertainties of the future.

This blog delves into the fundamental reasons why having an end of life plan is of utmost importance and highlights a client’s personal journey with how having an end of life plan made a significant impact on their life.

Legal Preparations when creating an End of Life Plan

The process of creating an end of life plan encompasses several legal preparations. The terminology and requirements associated with these legal aspects can often be perplexing. However, it’s our aim to provide clarity and offer a precise explanation of the necessary legal preparations for crafting an end of life plan.

In Queensland, these essential legal components include the creation of an advance health directive, the establishment of an enduring power of attorney, as well as comprehensive will and estate planning.

An advance health directive is a legally recognised avenue for conveying your preferences regarding healthcare decisions. This process occurs when you no longer possess the capacity to make choices or articulate your decisions concerning medical treatment.

On the other hand, an enduring power of attorney constitutes a formal legal document that empowers you to nominate a trusted individual to oversee your personal and financial affairs. These chosen attorneys are entrusted to act as your substitute decision-makers in situations where you are no longer capable of making choices independently.

Estate planning goes beyond simply having a will. It includes a comprehensive strategy and plan for your assets upon your passing. An estate plan comprises various documents, including a will, superannuation death benefits nominations, testamentary trusts, and life insurance.

Ensuring the preparation of these vital legal documents is imperative. Delaying or deferring this essential task by claiming “not being ready,” “not needing it immediately,” or planning to do it “when the time comes” could prove to be a costly mistake. The future remains unpredictable, and unforeseen circumstances may be just around the corner.

In cases where someone you love has ‘left it too late’ or has lost their capacity to complete these documents, it is still possible to record their values and healthcare preferences for times when they are unable to communicate these choices themselves. The completion of a Statement of Choices (commonly known as ‘Form B’) represents a values-based document that garners respect from healthcare professionals.

Now that we have explored the intricate legal preparations side of creating an end of life plan, it’s time to shift the focus towards the emotional and practical aspects of crafting an end of life plan. 

Emotional Legacy in Your End of Life Plan. 

When it comes to other aspects of creating an end of life plan and preferences, have you taken into account the concept of an emotional legacy, often referred to as an emotional will?

An emotional legacy can encompass various elements, such as heartfelt letters addressed to family and friends, sharing cherished thoughts, memories, and best wishes for the future. It might also involve curating a family and friends’ cookbook, where your signature recipes are collected. Alternatively, it could involve collaborative projects with family and friends, such as creating a beautiful garden oasis or working together on a much-loved family car. The possibilities are endless and can create heartwarming memories and connections.

Taking a Practical Approach to End of Life Preferences

Now, let’s focus on the practical aspects of your end of life plan and preferences. Have you considered where you’d like to spend your final moments, at home, in a hospice, or in a hospital? Are you inclined towards burial or cremation? Would you prefer a simple, eco-friendly cardboard coffin, or perhaps something more elaborate, like a casket adorned with 24-carat gold? 

For those opting for cremation, there’s the choice of having your ashes scattered to the winds or placed in a decorative urn, that serves as a beautiful reminder for your family. If a burial aligns with your preferences, you might contemplate a natural burial to minimise environmental impacts, or if you may choose to be buried in a mausoleum to align with religious and cultural beliefs. 

These are important questions that require thoughtful consideration and discussion with your family and friends. The conversation does not need to be sombre; in fact, it can be approached in a lighthearted manner. You might consider hosting a ‘death over dinner’ with friends or even embrace the “death deck,” a unique party game designed to explore this topic with a touch of humour.

When it comes to creating an end of life plan it should ideally be as specific as possible, and it’s wise to formulate multiple plans. Having a Plan A, Plan B, and even Plan C can prove invaluable in unforeseen circumstances. These contingencies ensure that the end of life care you receive aligns seamlessly with your deeply held values, wishes, and preferences, providing peace of mind for both you and your family.

Jemima’s Story 

JDOULAZ recently provided end of life care to a family that were caring for their mother, Jemima, as she approached end of life. We supported Jemima and her family for 8 months as she and her family navigated the challenges posed by a life-limiting illness. During this period, we engaged in deep and brave conversations with Jemima to ensure her end of life preferences were fully understood. Consequently, we developed three distinct plans, known as Plan A, B, & C, to comprehensively cover all bases and scenarios.

Initially, Plan A was put into action, which involved Jemima receiving support from her family in the comfort of her own home. However, as time passed, the family members became exhausted due to the round-the-clock care required to keep Jemima comfortable.

Following a compassionate discussion, it was mutually agreed upon that elements of Plan B needed to be incorporated to ensure the well-being and comfort of everyone involved in Jemima’s end of life care journey. With Jemima’s consent, she was transferred to a local hospice, where she could access the specialised palliative care necessary to manage her pain and ensure her comfort during her final days. This change also provided the family with the essential support they required.

Jemima continued to be surrounded by her family at end of life. On the day of her passing, we honoured her wishes by bringing her back home and placing her in her own, familiar bed. A cooling plate was used to maintain her body’s integrity. Jemima remained in the comfort of her home for three days, during which her family and friends came together to share their final goodbyes and pay their respects.

During this time, Jemima’s family lovingly cared for her, bathing and dressing her, adorning her DaisyBox cardboard coffin with drawings, paintings, and cherished photographs. She was laid to rest in her DaisyBox, surrounded by flowers and cuttings from her beloved garden that she had so lovely tended to. These three days spent with Jemima significantly transformed the grief and bereavement process for her friends and family. Looking back, they cherish this time with love and profound gratitude for the sense of community that emerged as they supported Jemima and each other.

Jemima’s willingness to openly discuss her end of life values, wishes, and preferences and her collaboration with JDOULAZ in creating Plan A, Plan B, and Plan C allowed us to deeply honour her choices. It also provided clarity and reassurance to her family, ensuring they were on the right path in fulfilling her wishes and doing the right thing.

This is why having an end of life plan is so essential. It serves as the compass guiding you through a journey only made possible by having brave and compassionate conversations. By clearly documenting your preferences, you can rest assured knowing that your wishes will be understood, valued and honoured. 

Having an end of life plan empowers you to articulate your values, define your choices, and establish a comprehensive plan for your final journey. It ensures that your unique story, wishes, and legacy are not lost but celebrated and respected as a testament to your life’s journey.

At JDOULAZ, we are dedicated to helping you navigate this essential process with sensitivity and professionalism. Our team is here to provide guidance, support, and expertise, ensuring that your end of life plan aligns seamlessly with your beliefs and values.

Don’t leave this vital aspect of your life to chance. Contact JDOULAZ today, and let’s start the important conversation today. Your peace of mind begins with a simple conversation, and we are here to help facilitate that journey with you.